@article{bb48c2b188144a64a30c01e0bbdab71c,
title = "Humanistic and economic burden among caregivers of adults and children with sickle cell disease and recurrent vaso-occlusive crises",
keywords = "Caregiver burden, Caregiver outcomes, Hemoglobinopathy, Qualitative research, Quality of life, Quantitative Research, Sickle cell disease",
author = "Lauren Lilly and Duncan Brown and Nanxin Li and Jennifer Drahos and Melanie Calvert and Anthony Mason and Zahra Pakbaz and Farrukh Shah and Ashley Valentine and Bethany Franks and Santana, \{Idaira Rodriguez\}",
note = "Publisher Copyright: {\textcopyright} The Author(s), under exclusive licence to Springer Nature Switzerland AG 2026.",
year = "2026",
month = sep,
doi = "10.1007/s11136-026-04347-0",
language = "English",
volume = "35",
journal = "Quality of Life Research",
issn = "0962-9343",
number = "9",
}